Dunia is the weekly private journal of a girl born with disability, who uses a wheelchair and a respiratory ventilator machine yet is no different to any other person, read about her struggle, tribulation as she strives to seek independence. The character and events of the journal are pure fiction and bear no relation to anyone.
Well Dunia here we are again, I did not think that I would actually return – no offense but I am not good with commitments yet at the same time I guess it is a reassuring thought that you can escape the external world at a click of a ‘mouse’ button.
It has been a strange week, a mixture of good, bad and weird. It started with me being slightly ill, well, I got an infection on a pressure sore wound that I have on my elbow (long story but it is chronic and will never be cured as long as I use my arm) so I am on a course of antibiotic for two weeks and have to use new dressing for the wound and had to go to hospital to have the elbow looked at by a so called ‘best’ doctor in the field. I fail to understand how hospitals and health profession lack the basic care elements; first, I was ignored by the receptionists who chose to ignore me and direct their questions to my carer, as though I am an invisible creature. Then the doctor just did not seem that interested in my wound, in fact he asked me “why do we see you here if we can’t operate on the wound?” I gave him a puzzled look then said “as you might have read from my medical notes I can’t have any form of surgery due to respiratory complications and I am seen regularly to keep a close eye on the wound”. That kept him quiet. Not that I came out from the hospital with anything but an appointment to be seen again in a year. Useful right? How weird that people all over the world travel to London for medical attention, I wonder if they have similar experiences.
Having the infected wound made things more difficult but I was determined not to let it ruin the last few weeks of my niece and nephew stay with us in London, I love these children more than anything; they are the source of joy, love and hope. Whenever I feel at a loss or come close to giving up I remind myself of these two precious creatures that regard me as their best friend and their reliable buddy.
I put my pain aside and we went to the Natural History Museum where the children got to see the big dinosaur zone, in contrast to my hospital visit, the museum staff were a world apart to the medical ones; friendly, polite and helpful. I also witnessed a positive type of discrimination where I did not have to queue to enter the museum or to see the dinosaur just because I am disabled and a wheelchair user, this irritated my 9 years old niece who voiced her concern that ‘it is not fair just because you are on a wheelchair you were allowed to pass all those people that had been waiting for ages’. I smiled and explained that being disabled you are restricted by time as you need to return for your carer’s arrival, plus you experience more pain and discomfort as sitting for long time will cause that. I looked at my niece and was reassured by her beautiful and caring smile that yes it makes sense and discrimination is not always bad.
You know Dunia, I have come to the conclusion that life is fair but the world isn’t. Do you get what I mean? We are given what is best for us, what we as individuals can tolerate, but the world or rather its inhabitants tarnish the fairness of life. I really need to stop now as the elbow is in so much pain I can no longer type…